The American Parkinson Disease Association, Inc. was founded in 1961 to "ease the burden and find a cure" for Parkinson's disease. Headquartered in New York, the organization focuses its energies on research, patient services, education and raising public awareness about the disease. APDA supports nine Centers for Advanced Research, 52 regional Information and Referral (I&R) Centers, 45 chapters, and 250 affiliated support groups nationwide. Each year, the APDA Scientific Advisory Board reviews grant applications, and submits recommendations, for funding researchers whose work shows promise for making scientific breakthroughs or for finding improved treatments for Parkinson's disease.
The Parkinson's Action Network is the unified voice of the Parkinson’s community advocating for better treatments and a cure. In partnership with other Parkinson’s organizations and their powerful grassroots network, PAN educates the public and government leaders on better policies for research and an improved quality of life for people living with Parkinson’s.
Today PAN serves as the voice of Parkinson's on numerous public policy issues affecting the Parkinson's community. In addition to continuing to work on NIH funding and research, the Parkinson's community is now a powerful voice on many crucial issues including Parkinson's-specific programs at the Departments of Defense and Veteran's Affairs, FDA drug approval issues, HHS programs (Medicare and Social Security), and our continuing struggle to achieve research freedom for stem cell research.
The Parkinson’s Disease Foundation (PDF) is a leading national presence in Parkinson’s disease research, education and public advocacy. The PDF works for the nearly one million people in the US who live with Parkinson’s by funding promising scientific research while supporting people living with Parkinson’s through educational programs and services. Since its founding in 1957, PDF has dedicated over $96 million to fund the work of leading scientists throughout the world and over $40 million to support national education and advocacy initiatives.
The Parkinson Pipeline Project is a grassroots group of advocates whose goal is to provide the patient perspective in the treatment development process. Through education, consultation, and participation with all stakeholders - including industry and the FDA - the Parkinson Pipeline Project hopes to increase clinical trial participation and accelerate approved treatment options. New PD treatments are followed from pre-clinical development to approval in the PD Pipeline Database found on their website.
The Michigan Parkinson Foundation (MPF) is dedicated to people living with Parkinson's. They are an independent non-profit 501 c(3) charitable corporation. MPF was founded in 1983 by people affected with Parkinson's disease, their family members, and health professionals for the purposes of education, support and research. MPF is funded primarily by private contributions, memorials and grants.
Guided by a volunteer Board of Directors and Professional Advisory Board, MPF staff and volunteers, along with partner organizations, provide services and resources to enhance the quality of life for people with Parkinson's and their families throughout the state.
Parkinson's Association of West Michigan (PAWM) is a non-profit organization funded solely by donations. They are committed to helping Parkinson patients and their families understand Parkinson's disease because understanding is the key to living with Parkinson's.
Parkinson's Association of West Michigan is the area's clearing house for Parkinson's disease information. PAWM meetings feature programs on physical and speech therapy, relaxation training, and other measures which are important in learning to live with Parkinson's disease. You will also learn about home health care and you will hear presentations by neurologists and other health professionals with Parkinson's experience and training.
Parkinson's Association of West Michigan also maintains a library of materials -- accessible at their meetings or by mail -- to help Parkinson patients and their families learn as much as possible about the disease. Following meetings they mail a newsletter for members who could not attend. Whatever you need to know about Parkinson's disease, PAWM can help you find the answers.
With an estimated 1 million people living with Parkinson's in the U.S. alone, the PD community is poised to take steps to transform their willingness into action — and results. Fox Trial Finder is one solution to help patients and their loved ones get involved in research by making it easier to find trials that are right for them.
General Assitance for Familes & Caregivers
The National Family Caregivers Association educates, supports, empowers and speaks up for the more than 65 million Americans who care for loved ones with a chronic illness or disability or the frailties of old age. NFCA reaches across the boundaries of diagnoses, relationships and life stages to help transform family caregivers' lives by removing barriers to health and well being.